5 minutes agoThe family seeks help to heal their son for eight months, which is costing 600 thousand euros
Periskopi(7 years ago)
(7 years ago)Harun Brahimi, who has not yet been a year old, has been diagnosed with a condition of treatment which cannot be covered by his family, as it costs about 600 thousand euros. Rrustem Brahimi, Aaron's father, has explained his son's illness insider. Our son is born with this type of problem [...]
Rrustem Brahimi, Aaron's father, has explained his son's illness insider.
Our son is born with this kind of genetic problem. But until a few days ago when we were in Skopje, we can't be diagnosed because doctors haven't been qualified for this disease. We've just been able to contact some hospitals in Europe over the phone, we've been told it's too expensive. It's astronomical figures, about 600 thousand euros in treatment. We've been watching Turkey. They're saying it's possible to heal with perhaps a smaller amount. The ministry in these cases shares only 30,000 euros”, Rrustemi has said.
Aaron's diagnosis is G12.9
Aaron's molecular genetics analysis testifies to egzonal delegation 7 and 8 of the SMN1 genius in homozygote mode and the presence of SMN2 seismogenic.
The contact number of the Rrustem is +38345699772, while below you find the account number where you can contribute.
Iban: XK0519014667321127
SW IFT CODE : NCBXKPR
