The World Day of Spina Bifida is marked, the number of sick people in Kosovo unknown

On the occasion of World Day of Spina Bifida, known as the spinal axis anomalies, today a sensationalizing activity was maintained in Pristina, where leaflets have been distributed to citizens so that they can become aware of the disease.

Valbona Stavileci, a nephrologist at the University Clinical Centre in Kosovo, has said the goal is for people to be aware that there are trained and capable doctors to manage these cases.

Special appeal, it has had for all those who walk and are in good condition, but have Spina Bifida to be notified.

The goal is to prove that even if a patient has Spina Bifida and he walks, he should announce that the kidneys and the urinary bladder are very damaged by Spina Bifida, and these are people in danger if they are not reported immediately after birth for treatment”, Stavileci noted.

Likewise, neonatologist Mirlinda Shala, Spina Bifida, has described it as very complex, which presents many problems for family members but also for society.

It has called for more support from institutions and nongovernmental organisations to help children with the problem.

And that's exactly what the objective and the point of sensibility institutions and non-government society organisations, material, moral support. In order to address these children properly, to be equal to other children”, she concluded.

Unlike the doctors, there was another confession, Sami Lek a citizen of the town of Drenas, where his daughter now has Spina Bifida eight years.

He says that during these years he faced various challenges, treating him to doctors without any institutional assistance.

In spite of that, he has expressed satisfaction right away with his daughter's recovery, although there have been six interventions.

Fortunately, my daughter is very good, despite some small complications, but compared to other cases it's fine. He goes to school in the third grade, he's got a little bit of trouble with his legs, but I'm treating him to the orthopedics, in Skopje I've had an operation, he's got six interventions of”, he concluded.

Otherwise, in the last seven years, every October 25th has activities for this disease so that citizens can become conscious.